Monday, April 18, 2011. It was a bad day from beginning to end. I normally wouldn’t be so negative in my remembrances, but this case requires an exception.
I was unable to sleep until somewhere around 3:45 a.m. (typical since receiving steroids during my epidural block). I then was abruptly wakened by the daily morning ruckus of getting Colson & Josiah off to school without killing each other.
COLSON: “Dad, Josiah fell asleep in his closet again.”
BOB: “Josiah! Get out of the closet & get downstairs.”
JOSIAH: “But I have to get dressed still!”
BOB: “You mean you haven’t even gotten dressed YET???”
JOSIAH: “Sorry! I fell asleep trying to find my clothes.”
COLSON: “It’s 7:40! We’re going to be late again! Hurry Up!”
BOB: “Josiah, get down here right now!”
JOSIAH: “OK! OK! I’m coming! No reason to get mad about it!”
Yes, that is an accurate sampling of our morning “routine”. Since I have such a skewed sleep pattern as a result of some of my medications, Bob helps get Josiah off to school in the morning. What a true demonstration of love!
I dragged my aching body out of bed at 9:00, turned my radio to WOWO to hear The Glenn Beck Show & got into the shower. No matter how much primping I did, nothing could prepare me for what was to come this day.
I had an 11:00 appointment with Dr. Jakacki. Reggie, Dr. Jakacki’s amazing mother, called me back to the exam room. I frustrated Reggie. She couldn’t get a blood pressure. She tried 3 times with no success. That bothered her! When Dr. Jakacki entered the room, he quickly got down to the issue of the day, which was going over the results of my spinal tap.
Doc was puzzled by the results of the spinal tap. All of the myriad of tests he ordered came back... Negative. My spinal fluid shows not even a trace of MS! At first I was elated! Praise God! But then it hit me: What about the lesions on my brain? What are they, if they aren’t caused by MS? When I asked this question, Doc shrugged & said that the results of the spinal tap are not the only way to diagnose MS. The theory is, if the spinal fluid has certain markers, it is definitely MS. However, if the spinal fluid does NOT have certain markers, it does NOT rule out MS.
In an effort to gain some clarity on my results, Dr. Jakacki asked me to wait in the exam room while he called Dr. Liu, a local neurologist. The more they talked, the more Dr. Liu realized that he needed to examine me. Next thing I know, Dr. Jakacki came bursting through the door & said, “Dr. Liu wants to see you right now!” OK. And off I went.
Dr. Liu’s office was just around the circle from Doc’s office so I didn't have a hard time finding it. Dr. Liu is a Chinese born neurologist who, before coming to this area, practiced in the greater Chicago area. I though it was so cute that he brought in his little black doctor’s bag (like Marcus Welby, M.D.!).
He wanted to study the MRI of my brain that I had previously done at Dupont Hospital, so he accessed my MRI through an Internet portal to Dupont’s radiology testing & records. He studied it very carefully & discovered two other lesions that are beginning to form. After explaining the MRI results to us, Dr. Liu performed a neuro exam on me. I used to be able to do all of those kinds of things without any hesitation. This time was different. I couldn’t walk a straight line (heel-to-toe) without nearly falling over. Standing with my eyes closed & my arms outstretched was very difficult. I felt like I was spinning almost. My reflexes were tested & failed miserably. I had some difficulty with the whole finger to the nose thing.
At the end of my appointment, Dr. Liu told us what he knew for certain: there are lesions on my brain & I have signs of neurological deficits. Even so, it is too premature to say that I have MS. There are strict diagnostic guidelines to follow with Multiple Sclerosis & I don’t meet enough of the criteria to achieve a diagnosis. He said that after I experience some sort of relapse, he can officially diagnose me. So that was that with Dr. Yu Liu.
I left Dr. Liu’s office & headed north to Bridgewater Golf Course to pick up Josiah. I thought he had his first golf match of the season, so I assumed that I would need to pick him up around 6:00. When I arrived at the course, I didn’t see Josiah anywhere. As a matter of fact, I didn’t see his coach’s van in the parking lot. I sat there for a while waiting for Josiah to appear, but he didn’t. Then it hit me that maybe I was at the wrong course. Sometimes the team plays at Bridgewater East, where I was, & Bridgewater West (formerly known as Greenhurst Golf Course). I decided to head over to the West course to see if they were playing there. Sure enough, I pulled into the parking lot at 6:00 to find Josiah sitting on the grass reading. His coach was in his van nearby. Josiah got in the truck & said, “Finally! I’ve been waiting here for an hour!” The schedule I was given was wrong. They only had practice until 5:00 - no match with another team. ARGH! Sorry for making you wait around, Mr. Baker!
My Monday ended with many questions still tumbling through my thoughts. As I finish writing this entry, it is nearly a week later & those questions are just as problematic as ever. Last week was brutal for me. I ended up having to go to the Outpatient Clinic at Dupont Hospital for magnesium infusions every day. I also received IV antibiotics because I had a kidney infection - a common occurrence for me. I struggled terribly with my emotions all week. Getting up every day was a feat in itself. My heart was racing & my stomach was churning because of all of the unsettled scenarios in my life.
One night Bob & I had a challenging time with our sons & I became very upset. I started to cry, which is not something I do frequently. Bob came to comfort me. He put his arms around me & asked what was wrong. I replied, “What has happened to our family?” His answer hit me with a thud. “Well, a lot.” Wow! How profound those few words were! That just broke the floodgates wide open & I couldn’t turn the tears off! Since losing my job in 2008 due to my health problems, I have lost two of my most beloved mentors to cancer. My mother, my greatest mentor, also succumbed to that heinous disease. My husband had a massive stroke & had to fight for months to regain his strength. Two of our children walked away from the biblical values we raised them in. Bob was essentially fired (aka “forced to resign”) from his position as senior pastor. My dad had a mild heart attack. One of my sisters left her family because of adultery. Our oldest daughter left an abusive relationship, but didn’t do so alone. It wasn’t until she suffered a miscarriage that she knew she had been pregnant. Our first grandchild is in Heaven. I have had five invasive surgeries JUST since 2008, not including the many facet joint blocks & nerve ablations I’ve had in my neck & low back. Because of Bob’s stroke, my medical problems & the loss of Bob’s job, we suffered tremendously financially. On Thursday, we had our primary hearing in bankruptcy court. We had a vehicle repossessed, the land contract agreement we had for our last house fell through & the home is in foreclosure, we are unable to do anything to help our sons with their college expenses & we learned last week that Lutheran Medical Group, who owns Dr. Jakacki’s practice, is kicking us out of his practice because of their inclusion in our bankruptcy. That is a LOT to take in over such a short period of time!
I honestly thought that I have dealt with all of our suffering fairly well. But this past week has pushed me past my ability to withstand & I have struggled tremendously just to keep my composure. I have cried myself to sleep nearly every night for the past week. I have been anxious & fearful. I have felt alone & forgotten. I have been void of strength, both physically & emotionally. The news about losing Dr. Jakacki as my primary care physician sent me over the edge. I know the man is only human & certainly doesn’t have every answer to my health riddles. But he was the first doctor to take me seriously after four years of desperate searching for answers. I became his patient when he was still in medical school. Over the past 10 years he has been faithful to give me the very best care. The thought of leaving my doctor is frightening because it means I will have to start from scratch with someone new, someone who has no idea of who I am & what my health puzzle looks like. Frankly, I am terrified.
As I finish composing this note, it is Easter Sunday. I was so glad to be in God’s house today! Easter is my favorite day of the year. It is even more important to me than my birthday. I was blessed to have Jess & Jeff sitting with us, as well as Rachel & a friend of hers. The worship time at Pathway today was invigorating & powerful. After our time singing, they played a video clip of a testimony about someone’s near-death experience. I about fell over when I saw Dr. Jakacki on the big screen! God used his testimony to remind me that times of hardship & pain are designed to draw us nearer to Christ. God spoke to my heart & reminded me know that all of the suffering of the past & future are a sign that He has a purpose for the pain. If tribulation is my companion, He will give me the grace sufficient to rise above it. However, His grace can only be utilized through complete abandonment to His lordship. “Trust and Obey, for there’s NO other way to be happy in Jesus, but to Trust and Obey.”
Oh, my precious Savior! I beg your forgiveness for allowing seeds of doubt & fear to gain a foothold in my heart. Forgive me for questioning Your sovereignty in my life. Thank You, Jesus, for enduring the cross, scorning it’s shame. Thank You for conquering sin & death forever! And thank You for drawing me near to Yourself in a personal love relationship that will never end! I am most unworthy of Your sacrifice. I am but one insignificant vapor of life in the grand scheme of the universe, yet from the beginning of time You set me apart for Your purposes, to somehow become a vessel of use in Your hands. I am humbled. I am awed. I am forever grateful. Make my life a living sacrifice, holy & acceptable to You. I yield my whole being to Your design & direction. Let Your grace be sufficient for me, for Your power is made perfect in weakness.
He is Risen! HE IS RISEN, INDEED!
I was unable to sleep until somewhere around 3:45 a.m. (typical since receiving steroids during my epidural block). I then was abruptly wakened by the daily morning ruckus of getting Colson & Josiah off to school without killing each other.
COLSON: “Dad, Josiah fell asleep in his closet again.”
BOB: “Josiah! Get out of the closet & get downstairs.”
JOSIAH: “But I have to get dressed still!”
BOB: “You mean you haven’t even gotten dressed YET???”
JOSIAH: “Sorry! I fell asleep trying to find my clothes.”
COLSON: “It’s 7:40! We’re going to be late again! Hurry Up!”
BOB: “Josiah, get down here right now!”
JOSIAH: “OK! OK! I’m coming! No reason to get mad about it!”
Yes, that is an accurate sampling of our morning “routine”. Since I have such a skewed sleep pattern as a result of some of my medications, Bob helps get Josiah off to school in the morning. What a true demonstration of love!
I dragged my aching body out of bed at 9:00, turned my radio to WOWO to hear The Glenn Beck Show & got into the shower. No matter how much primping I did, nothing could prepare me for what was to come this day.
I had an 11:00 appointment with Dr. Jakacki. Reggie, Dr. Jakacki’s amazing mother, called me back to the exam room. I frustrated Reggie. She couldn’t get a blood pressure. She tried 3 times with no success. That bothered her! When Dr. Jakacki entered the room, he quickly got down to the issue of the day, which was going over the results of my spinal tap.
Doc was puzzled by the results of the spinal tap. All of the myriad of tests he ordered came back... Negative. My spinal fluid shows not even a trace of MS! At first I was elated! Praise God! But then it hit me: What about the lesions on my brain? What are they, if they aren’t caused by MS? When I asked this question, Doc shrugged & said that the results of the spinal tap are not the only way to diagnose MS. The theory is, if the spinal fluid has certain markers, it is definitely MS. However, if the spinal fluid does NOT have certain markers, it does NOT rule out MS.
In an effort to gain some clarity on my results, Dr. Jakacki asked me to wait in the exam room while he called Dr. Liu, a local neurologist. The more they talked, the more Dr. Liu realized that he needed to examine me. Next thing I know, Dr. Jakacki came bursting through the door & said, “Dr. Liu wants to see you right now!” OK. And off I went.
Dr. Liu’s office was just around the circle from Doc’s office so I didn't have a hard time finding it. Dr. Liu is a Chinese born neurologist who, before coming to this area, practiced in the greater Chicago area. I though it was so cute that he brought in his little black doctor’s bag (like Marcus Welby, M.D.!).
He wanted to study the MRI of my brain that I had previously done at Dupont Hospital, so he accessed my MRI through an Internet portal to Dupont’s radiology testing & records. He studied it very carefully & discovered two other lesions that are beginning to form. After explaining the MRI results to us, Dr. Liu performed a neuro exam on me. I used to be able to do all of those kinds of things without any hesitation. This time was different. I couldn’t walk a straight line (heel-to-toe) without nearly falling over. Standing with my eyes closed & my arms outstretched was very difficult. I felt like I was spinning almost. My reflexes were tested & failed miserably. I had some difficulty with the whole finger to the nose thing.
At the end of my appointment, Dr. Liu told us what he knew for certain: there are lesions on my brain & I have signs of neurological deficits. Even so, it is too premature to say that I have MS. There are strict diagnostic guidelines to follow with Multiple Sclerosis & I don’t meet enough of the criteria to achieve a diagnosis. He said that after I experience some sort of relapse, he can officially diagnose me. So that was that with Dr. Yu Liu.
I left Dr. Liu’s office & headed north to Bridgewater Golf Course to pick up Josiah. I thought he had his first golf match of the season, so I assumed that I would need to pick him up around 6:00. When I arrived at the course, I didn’t see Josiah anywhere. As a matter of fact, I didn’t see his coach’s van in the parking lot. I sat there for a while waiting for Josiah to appear, but he didn’t. Then it hit me that maybe I was at the wrong course. Sometimes the team plays at Bridgewater East, where I was, & Bridgewater West (formerly known as Greenhurst Golf Course). I decided to head over to the West course to see if they were playing there. Sure enough, I pulled into the parking lot at 6:00 to find Josiah sitting on the grass reading. His coach was in his van nearby. Josiah got in the truck & said, “Finally! I’ve been waiting here for an hour!” The schedule I was given was wrong. They only had practice until 5:00 - no match with another team. ARGH! Sorry for making you wait around, Mr. Baker!
My Monday ended with many questions still tumbling through my thoughts. As I finish writing this entry, it is nearly a week later & those questions are just as problematic as ever. Last week was brutal for me. I ended up having to go to the Outpatient Clinic at Dupont Hospital for magnesium infusions every day. I also received IV antibiotics because I had a kidney infection - a common occurrence for me. I struggled terribly with my emotions all week. Getting up every day was a feat in itself. My heart was racing & my stomach was churning because of all of the unsettled scenarios in my life.
One night Bob & I had a challenging time with our sons & I became very upset. I started to cry, which is not something I do frequently. Bob came to comfort me. He put his arms around me & asked what was wrong. I replied, “What has happened to our family?” His answer hit me with a thud. “Well, a lot.” Wow! How profound those few words were! That just broke the floodgates wide open & I couldn’t turn the tears off! Since losing my job in 2008 due to my health problems, I have lost two of my most beloved mentors to cancer. My mother, my greatest mentor, also succumbed to that heinous disease. My husband had a massive stroke & had to fight for months to regain his strength. Two of our children walked away from the biblical values we raised them in. Bob was essentially fired (aka “forced to resign”) from his position as senior pastor. My dad had a mild heart attack. One of my sisters left her family because of adultery. Our oldest daughter left an abusive relationship, but didn’t do so alone. It wasn’t until she suffered a miscarriage that she knew she had been pregnant. Our first grandchild is in Heaven. I have had five invasive surgeries JUST since 2008, not including the many facet joint blocks & nerve ablations I’ve had in my neck & low back. Because of Bob’s stroke, my medical problems & the loss of Bob’s job, we suffered tremendously financially. On Thursday, we had our primary hearing in bankruptcy court. We had a vehicle repossessed, the land contract agreement we had for our last house fell through & the home is in foreclosure, we are unable to do anything to help our sons with their college expenses & we learned last week that Lutheran Medical Group, who owns Dr. Jakacki’s practice, is kicking us out of his practice because of their inclusion in our bankruptcy. That is a LOT to take in over such a short period of time!
I honestly thought that I have dealt with all of our suffering fairly well. But this past week has pushed me past my ability to withstand & I have struggled tremendously just to keep my composure. I have cried myself to sleep nearly every night for the past week. I have been anxious & fearful. I have felt alone & forgotten. I have been void of strength, both physically & emotionally. The news about losing Dr. Jakacki as my primary care physician sent me over the edge. I know the man is only human & certainly doesn’t have every answer to my health riddles. But he was the first doctor to take me seriously after four years of desperate searching for answers. I became his patient when he was still in medical school. Over the past 10 years he has been faithful to give me the very best care. The thought of leaving my doctor is frightening because it means I will have to start from scratch with someone new, someone who has no idea of who I am & what my health puzzle looks like. Frankly, I am terrified.
As I finish composing this note, it is Easter Sunday. I was so glad to be in God’s house today! Easter is my favorite day of the year. It is even more important to me than my birthday. I was blessed to have Jess & Jeff sitting with us, as well as Rachel & a friend of hers. The worship time at Pathway today was invigorating & powerful. After our time singing, they played a video clip of a testimony about someone’s near-death experience. I about fell over when I saw Dr. Jakacki on the big screen! God used his testimony to remind me that times of hardship & pain are designed to draw us nearer to Christ. God spoke to my heart & reminded me know that all of the suffering of the past & future are a sign that He has a purpose for the pain. If tribulation is my companion, He will give me the grace sufficient to rise above it. However, His grace can only be utilized through complete abandonment to His lordship. “Trust and Obey, for there’s NO other way to be happy in Jesus, but to Trust and Obey.”
Oh, my precious Savior! I beg your forgiveness for allowing seeds of doubt & fear to gain a foothold in my heart. Forgive me for questioning Your sovereignty in my life. Thank You, Jesus, for enduring the cross, scorning it’s shame. Thank You for conquering sin & death forever! And thank You for drawing me near to Yourself in a personal love relationship that will never end! I am most unworthy of Your sacrifice. I am but one insignificant vapor of life in the grand scheme of the universe, yet from the beginning of time You set me apart for Your purposes, to somehow become a vessel of use in Your hands. I am humbled. I am awed. I am forever grateful. Make my life a living sacrifice, holy & acceptable to You. I yield my whole being to Your design & direction. Let Your grace be sufficient for me, for Your power is made perfect in weakness.
He is Risen! HE IS RISEN, INDEED!